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About the project

The UJO project has been designed in order to enhance mutual cooperation between urologists and oncologists.

Basic characteristics of the project

The project is designed as a clinical registry which is focused on non-interventional monitoring of patients with hormone refractory prostate cancer (HRPC). The registry primarily follows clinical and research objectives, and is aimed at creation of a solid database, which will monitor the procedures of diagnosis and treatment. This database will make it possible to assess risk factors and prognostic factors, and will become a reference information system to monitor main treatment strategies. The project should improve the communication among Czech health care facilities involved in prostate cancer treatment, and should contribute to the implementation of electronic case report forms (eCRF) in patients with this diagnosis. The project has a solid background of an on-line available information system, central data management and help desk. Informed consent is required from patients whose records would be entered into the database.

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Main features of the project

The main feature of the project is the cooperation between the two medical specialties (and corresponding expert medical associations): urology and oncology. The urologist enters the patient into the system as soon as the hormone refractory prostate cancer (HRPC) is unequivocally diagnosed. At the same time, the patient is referred to an oncologist in a nearby cancer centre, who will provide consultation and potentially prescribe anti-cancer therapy. The project does not stipulate neither sending off the patient, nor any specific cancer centre to be preferred. Decisions on all steps – including the indication of anti-cancer therapy – are made by the attending physician. If the patient is referred to a cancer centre, a parametric record already exists in the project's information system. The cancer centre takes up this record to process it further. If needed, the patient's diagnose might be verified, anti-cancer therapy is prescribed, and the patient is subsequently sent back to the urology centre to be followed up. The information system, which is specifically customized to this type of cooperation, enables a direct communication among the involved physicians over entered data, as well as sharing the data between urologists and oncologists.

The project significantly enhances the mutual communication among the involved health care facilities over the patients' data. This type of communication has not been not widely available in the Czech Republic, as the hospital information systems (HIS) are very diverse. The UJO project enhances the communication between urologists and oncologists in two different ways:

  • using the e-Consultation and discussion fora, where clinical problems can be discussed, without the necessity of patient's transfer,
  • using the shared electronic case report forms, in case the patient is referred to another specialist.

Project objectives

  1. To establish an on-line available parametric documentation of patients with prostate cancer, which will be subsequently filled in by physicians from both central and regional health care facilities.
  2. To allow sharing of records within information system for health care facilities which want to share them (data sharing only applies to facilities which enter data into the system).
  3. To establish a functional and open on-line information system, allowing the participation to unlimited number of health care facilities. To establish a standardized data management, as well as reporting over patients’ data.
  4. To establish e-Consultation within the developed information system, facilitating the communication of participating physicians of different specialties.
  5. To establish a continuous data monitoring, to enhance mutual cooperation and communication among the centres.
  6. To help recognize the significance and influence of risk factors and prognostic factors for this disease, and to map the diagnostic and therapeutic procedures.

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